Asociación Española de PSP (Spanish PSP Association), commonly referred to as PSP Spain, is the national patient advocacy organization for progressive supranuclear palsy in Spain. The organization provides support to Spanish patients and families, promotes research into PSP, and raises awareness of the condition among healthcare professionals and the public.
History
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PSP Spain (Asociación Española de PSP)
Overview
Mermaid diagram (expand to render)
Asociación Española de PSP (Spanish PSP Association), commonly referred to as PSP Spain, is the national patient advocacy organization for progressive supranuclear palsy in Spain. The organization provides support to Spanish patients and families, promotes research into PSP, and raises awareness of the condition among healthcare professionals and the public.
History
The Spanish PSP Association was founded to serve the growing number of PSP patients identified in Spain, where movement disorder specialists have built substantial expertise in atypical parkinsonian syndromes. The organization operates as part of the broader European PSP network and collaborates closely with [CurePSP](/organizations/curepsp) and other national PSP organizations.
Mission and Activities
Patient Support
PSP Spain provides comprehensive support services:
National helpline: Telephone support in Spanish for patients and families
Information materials: Printed and digital resources about PSP management and care
Regional support groups: Connecting patients across Spain's autonomous communities
Caregiver support programs: Specialized resources for those caring for PSP patients
Research Funding
The organization supports Spanish PSP research:
Research grants: Funding for Spanish researchers studying PSP
International collaboration: Facilitating partnerships between Spanish and international research groups
Clinical trial promotion: Supporting recruitment for trials in Spain
Training awards: Supporting Spanish researchers to train in leading international centers
Healthcare Partnerships
PSP Spain maintains relationships with major Spanish research centers:
Hospital Clínico San Carlos, Madrid — Neurology and neurodegenerative disease research
Hospital Universitario Virgen del Rocío, Seville — Clinical care and research in tauopathies
Instituto de Salud Carlos III — Government research funding
European Network
PSP Spain is part of the European PSP advocacy network, collaborating with:
[PSP France](/organizations/psp-france) — Shared European initiatives
[PSP Germany](/organizations/psp-germany) — Cross-border research programs
[PSP Italy](/organizations/psp-italy) — Southern European collaboration
PSP Spain is governed by a board of directors with patient, caregiver, and medical representation:
President: Elena Martínez Sánchez (patient advocate and founding member)
Medical Advisory Board: Includes neurologists from all major Spanish movement disorder centers
Scientific Committee: Coordinates with Spanish researchers and the International PSP Society
Organizational Structure
The organization operates through:
National coordination: Madrid headquarters, managing regional operations
Regional chapters: Catalonia, Andalusia, Valencia, Basque Country, Galicia, and Madrid
Online support: Digital communities and telemedicine support programs
Clinical Research in Spain
Spain has become a significant site for international PSP trials:
Key Spanish Research Centers
Hospital Clínico San Carlos, Madrid — Led by Dr. José L. López-Sendón, Phase 1/2 trial site for tau aggregation inhibitors
Hospital Universitario Virgen del Rocío, Seville — [Alberto Martínez-Ramón](/researchers/alberto-martinez-ramon) group, neuroimaging and biomarker research
Hospital de la Santa Creu i Sant Pau, Barcelona — Movement disorder center with active PSP cohort
Centro de Investigación Médica Aplicada (CIMA), Pamplona — Basic science and translational research
IDIBAPS, Barcelona — [Río Hortega](/researchers/rio-hortega) fellow program in neurodegeneration
[ERN-RND European Reference Network](https://ern-rnd.eu/)
See Also
[Aging and Rejuvenation Knowledge Gaps](/wiki/gaps-aging) — activates
[Aging and Rejuvenation Knowledge Gaps](/wiki/gaps-aging) — treats
[Gap Analysis & Research Strategy](/wiki/gaps-gap-analysis) — activates
[Gap Analysis & Research Strategy](/wiki/gaps-gap-analysis) — associated_with
[Gap Analysis & Research Strategy](/wiki/gaps-gap-analysis) — interacts_with
[Gap Analysis & Research Strategy](/wiki/gaps-gap-analysis) — therapeutic_target
Pathway Diagram
The following diagram shows the key molecular relationships involving PSP Spain — Asociación Española de PSP discovered through SciDEX knowledge graph analysis: